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People
living with AIDS key to the fight
Extracted from the UNICEF update from the First Zimbabwean National
AIDS Conference June 15-18, 2004
June 15, 2004
HIV infected
people are the best disseminators of information when it comes to
HIV and AIDS. This was the conclusion reached by participants at
a panel discussion on Day One of the conference. One of the panelists,
Lynde Francis founding member of The Centre, a pre and post counselling
HIV and AIDS body, and who has herself been living with the virus
for 18 years, said it was important to use "patient experts" to
teach awareness because being HIV-infected they were "more expert"
than the actual health experts in that field. She said some of the
people who had come to The Centre for counseling had themselves
become counselors, to good effect. Changing the perception of HIV-infected
people from victims to "proud and loud" providers of service in
their communities was one of the most effective ways of dealing
with stigma, she added.
Among the panelists
discussing the multi-sectoral approach to the issue of care were
Hercules Maguma of Varichem, the pharmaceutical company providing
generic ARVs, Dr Kadzirange of ZAPP (Zimbabwe Aids Prevention Project),
Dr Dhene of UNAIDS and Dr James Dhuri, who was representing the
traditional medical practitioners. Sebastian Nyakapanga, another
of the panelists and a recipient of ART (anti-retroviral therapy)
agreed with the sentiments of Francis. He said to be able to go
out and empower others, the process had to "start in your mind",
with knowing one's status and to be completely truthful about so
as to be able to "do the right thing at the right time". The discussion
also concluded that to make real inroads in the fight against the
disease, it was important to make the approach women-centered because
women had the power to influence their husbands, children and other
women while men had little impact.
Participants
heard that according to a recent report, 58% of infected in sub
Saharan Africa were women while more than 80% of those who had access
to treatment were men. The wisdom of simplifying the language of
AIDS was discussed, as well as having simplified information leaflets
for patients and having all HIV and AIDS stakeholders coordinating
their activities rather than doing things separately.
Participants
heard that the Ministry of Health and Child Welfare is working on
guidelines on nutrition while The Centre which has been working
with HIV and AIDS infected children for many years without the benefit
of ARVs, has available, a booklet on how people can use food as
therapy particularly the local traditional cuisine which is both
available and affordable.
Participants
agreed on the prudence of having second line drugs as part of a
backup plan against the development of resistance. Generic ARVs
which are said to cost a minimum of Z$150 000 were too high said
Dr Dhene of UNAIDS given that internationally, the price of ARVs
was as low as US$300 per year. Hercules Maguma of Varichem explained
that the cost was determined by the pharmaceutical ingredients but
that they were working at reducing the cost.
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